“Grief” Our Story Featured On Trust the Journey Project
A special thank you to Trust the Journey Project for sharing our story with a special focus on grief and finding meaning.
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Liz
Feb 28, 20204 min read
Why Rare Disease Day Matters
Those who face rare diseases are nothing short of inspiring. These are people who don't take "firsts" for granted...
264 views1 comment
Liz
Oct 31, 20193 min read
A Year of Physical Therapy in GIFs
Before this all started, I didn't know physical therapy for a baby was a thing. Now, "How can I turn this into an exercise" consumes me.
255 views0 comments
Liz
Sep 29, 20195 min read
The Moment that Changed Everything
“So, I didn’t understand the results of her genetic tests – what did the neurologist say?” Everything stopped. I glanced at the doctor...
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Liz
Sep 18, 20192 min read
Exciting Announcements in Angelman Syndrome Research
Exciting things are happening in Angelman Syndrome research! OV101 | CRISPR/Cas9 | Gene Therapy | #cureangelmannow
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Liz
Aug 29, 20192 min read
Welcome to The CAMI Project
After much reflection, I've decided it's time to launch The CAMI Project. Here are my hopes for this blog and this community!
188 views0 comments
Liz
Aug 29, 20192 min read
The Smile Changing My World
One year ago, worries of missed milestones launched months of specialists and tests. Recently, we received a diagnosis we never saw coming.
758 views2 comments
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