Celebrating a Year of Growth! (And the hard moment that helped me appreciate how far we've come.)
In honor of Cami's 3rd birthday, we're celebrating the inchstones and progress she's made over the past year!
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Liz
Apr 9, 20206 min read
5 Recommendations for "What To Do" After Receiving Your Child's Rare Diagnosis
The worry and stress will never go away. But, I'm happy to report that one year later, the weight has lifted.
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Liz
Feb 28, 20204 min read
Why Rare Disease Day Matters
Those who face rare diseases are nothing short of inspiring. These are people who don't take "firsts" for granted...
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Liz
Nov 22, 20195 min read
Epilepsy: 3 Lessons Learned
November is National Epilepsy Awareness Month. Of all we’ve faced, epilepsy has been (by far) the most complicated and worrisome.
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Liz
Sep 18, 20192 min read
Exciting Announcements in Angelman Syndrome Research
Exciting things are happening in Angelman Syndrome research! OV101 | CRISPR/Cas9 | Gene Therapy | #cureangelmannow
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