Life First, Then Blog
I've stopped blogging (for now) and here's why!
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Liz
Jan 23, 20214 min read
Celebrating a Year of Growth! (And the hard moment that helped me appreciate how far we've come.)
In honor of Cami's 3rd birthday, we're celebrating the inchstones and progress she's made over the past year!
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Liz
Dec 22, 20203 min read
SURPRISE: We had a baby!
It's been several months since I last blogged and here's a big part of the reason... SURPRISE! WE HAD A BABY! But there's another reason...
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Liz
May 9, 20203 min read
“Grief” Our Story Featured On Trust the Journey Project
A special thank you to Trust the Journey Project for sharing our story with a special focus on grief and finding meaning.
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Liz
Apr 9, 20206 min read
5 Recommendations for "What To Do" After Receiving Your Child's Rare Diagnosis
The worry and stress will never go away. But, I'm happy to report that one year later, the weight has lifted.
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Liz
Apr 1, 20203 min read
COVID-19 & Our Special Needs Family
As COVID-19 expands across the globe, I’d be lying if I said I wasn’t worried...
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Liz
Feb 28, 20204 min read
Why Rare Disease Day Matters
Those who face rare diseases are nothing short of inspiring. These are people who don't take "firsts" for granted...
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Liz
Dec 20, 20193 min read
How A Special Needs Diagnosis Has Changed Christmas
A look into how Cami's special needs diagnosis has changed Christmas: How we decorate, how we shop, and how we are still so grateful.
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Liz
Nov 22, 20195 min read
Epilepsy: 3 Lessons Learned
November is National Epilepsy Awareness Month. Of all we’ve faced, epilepsy has been (by far) the most complicated and worrisome.
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Liz
Nov 17, 20192 min read
Go, Baby, Go!
Cami receives a GoBabyGo motorized car adapted to her special needs offering her more independent, age-appropriate mobility!
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Liz
Oct 31, 20193 min read
A Year of Physical Therapy in GIFs
Before this all started, I didn't know physical therapy for a baby was a thing. Now, "How can I turn this into an exercise" consumes me.
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Liz
Oct 15, 20192 min read
To My Oldest Daughter
My sweet girl, I know this year has been hard on you. You're a military child, a special needs sibling, and you're three. But know this...
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Liz
Sep 29, 20195 min read
The Moment that Changed Everything
“So, I didn’t understand the results of her genetic tests – what did the neurologist say?” Everything stopped. I glanced at the doctor...
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Liz
Sep 20, 20195 min read
Our Path to Diagnosis Part 2: Therapists, and Specialists, and Tests, OH MY!
Everyone's path to diagnosis is different, but for us it was an emotional roller coaster of hopeful theories debunked by harsh realities.
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Liz
Sep 18, 20192 min read
Exciting Announcements in Angelman Syndrome Research
Exciting things are happening in Angelman Syndrome research! OV101 | CRISPR/Cas9 | Gene Therapy | #cureangelmannow
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Liz
Sep 12, 20193 min read
Our Path to Diagnosis Part I: Early Signs
Cami was diagnosed with Angelman Syndrome at 15-months, but I knew when I was pregnant that something wasn't right. Here's how...
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Liz
Aug 29, 20192 min read
Welcome to The CAMI Project
After much reflection, I've decided it's time to launch The CAMI Project. Here are my hopes for this blog and this community!
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Liz
Aug 29, 20192 min read
The Smile Changing My World
One year ago, worries of missed milestones launched months of specialists and tests. Recently, we received a diagnosis we never saw coming.
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