ABOUT | The CAMI Project

Hello, I'm Liz.

Welcome to The CAMI Project! I'm Liz, a military spouse and momma to three little girls. I am Cami's full-time home health aide, work part-time raising funds to support those with Angelman syndrome, and am grateful to have more than a decade of nonprofit experience. We currently live in the beautiful state of Colorado!

In April 2019, we received test results that confirmed Cami (then, 14 months) is missing a critical part of her 15th chromosome. A few weeks later, it was confirmed that she has Angelman Syndrome (AS). AS is a rare neuro-genetic disorder that occurs in about 1 in every 15,000 live births. Its characteristics or symptoms include developmental delay, lack of speech, seizures, walking and balance disorders, and requires lifelong care. This diagnosis has flipped our world upside down. Yet, it has also inspired us with so much hope for her future, is connecting us with an incredibly powerful network of support, and is teaching us to be even stronger parents and advocates.

Here at The CAMI Project, I will be sharing our journey with Angelman Syndrome to Connect, Advocate, Make a Difference, and Inspire. This isn't just for AS or special needs families, but for all those who interested in helping us create a kinder world and brighter future for the special needs children in our lives. I look forward to sharing our lessons learned, celebrating the inchstones and miracles to come, hearing your stories, and being part of the generation that will find a cure to AS and similar disorders!